Myotonic Dystrophy  Expert

Ann lives in Utah and has a family of 4 children, who are now adults.  Her husband and all of her children were diagnosed with myotonic dystrophy (DM) in 1998. It is one of the muscular dystrophies and was genetically transferred through her husband to her children.  Getting the diagnoses explained the challenges Ann and her husband faced with parenting.  The kids  weren’t just difficult, tired, and lazy teenagers, they had received a dominant gene for DM from their father.

The Book

Ann Woodbury is a mother of four children who have Myotonic Muscular Dystrophy. Knowing nothing about this illness, Ann suffered with their symptoms and was alienated from her church and community due to their undiagnosed and debilitating issues. They were not just tired, lazy, apathetic children. They actually had a genetically inherited disease, and their father was the carrier of the gene.


Ann wants to speak to PTA members, wellness groups, MOMs groups, teacher’s associations, Chambers of Commerce, Kiwanis. etc.

Topics for Keynotes, Lunch and Learns, Workshops;

  • The Ann Woodbury Story- The Hidden Disorder that Nearly Destroyed My Family
  • Do Your Children Have Myotonic Muscular Dystrophy? What are the Symptoms and What Can You Do About It?
  • Do you need help figuring out your own “Self-care Routine”?



My understanding of Myotonic Muscular Dystrophy (DM)  is shaped primarily by my own observation, as it is complicated by the varied way in which it presents in my family members. While I have studied extensively and work with doctors to expand my knowledge of the disease, I am not a medical professional and cannot prescribe treatment.