Guest blogger: Jonathan WilliamsI met Ann at a writer’s conference in the fall of 2016. When I told her what I did—helping people write their own books and tell their stories—she told me she had a story to tell and wanted to know more. Ann impressed me as someone who...
Kent and Andrea update

Kent and Andrea update

We have had illness at our house. Kent (who has cancer along with his myotonic muscular dystrophy got real sick and ended up at Huntsman Acute Care (Huntsman ER). They gave him a LOT of fluids and ran a full panel of bloodwork to determine what he had. It was...
Myotonic Dystrophy: Doing What Needs to be Done

Myotonic Dystrophy: Doing What Needs to be Done

I can only imagine that when you have a child that has Down’s syndrome, Batten disease, or many of the other disorders that affect both mind and body, that you do what you have to do. Of course, it would be a very intensive labor of love to help them and keep them...
Absent Caregiver

Absent Caregiver

When I got up and looked at my text messages I saw one from Rily (today’s caregiver), that he had sent at midnight. It said “I’m so sorry to text you so late but I fell off a roof a few hours ago. I got a little hurt so I won’t be there...
Myotonic dystrophy job coach

Myotonic dystrophy job coach

I am just jumping in here midstream. If you want the backstory, I do have my story written in manuscript form. Let me know if you are interested in a copy.Michael has worked with Vocational Rehabilitation (Voc. Rehab.) since 2002. Voc. Rehab. hung in there putting him...