by Ann S Woodbury | Mar 28, 2022 | Uncategorized
Living with Disabilities by Ann S Woodbury – Myotonic Dystrophy Expert Many of us have heard what it’s like to live with disabilities through the eyes of Emily Perl Kingsley. WELCOME TO HOLLAND I am often asked to describe the experience of raising a child with a...
by Ann S Woodbury | Mar 21, 2022 | Uncategorized
The definition for marginalization is being treated as insignificant or peripheral. Being marginalized happens to many groups in our society. There are a lot of efforts in our society to stop marginalization. We hear campaigns against it taught in our schools and...
by Ann S Woodbury | Mar 14, 2022 | Uncategorized
I took my daughter – Andrea – to Stanford last week. We needed some help in pursuing “benefits” for her. It has been 1 ½ years since she left work due to her Myotonic Dystrophy (DM) and she is still unapproved for Social Security. My journey of living with...
by Ann S Woodbury | Mar 7, 2022 | Uncategorized
I had an unsettling dream last night. I dreamt that an extended family member asked me to put a presentation together for a big event. A few minutes before the event started I asked this family member what the topic was that I was supposed to present on. They...
by Ann S Woodbury | Feb 28, 2022 | Uncategorized
We as caregivers end up in the role of helping our Myotonic Dystrophy (DM) family members. As we go through our day many things have become automated – we don’t give it a second thought because we just need to do these helpful things. If we can take a step back...
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