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Support by Myotonic Dystrophy Expert Ann S Woodbury

Support by Myotonic Dystrophy Expert Ann S Woodbury

by Ann S Woodbury | Feb 21, 2022 | Uncategorized

My children (now adults) all have a hard time waking up. Even going to bed is difficult for them but they have all eventually found routines that work for them at night so that they get to sleep at a decent time. They also use a bi-pap (Trilogy) at night. With all of...
Help for my Family by Myotonic Dystrophy Expert Ann S Woodbury

Help for my Family by Myotonic Dystrophy Expert Ann S Woodbury

by Ann S Woodbury | Feb 14, 2022 | Uncategorized

My family (husband and 4 children – now adults) are all diagnosed with Myotonic Dystrophy (DM). DM affects as many or more systems in the body than any other disease. The effects that are usually the most compromising for the individual with DM are the fatigue and the...
Coaching by Myotonic Dystrophy Expert Ann S Woodbury

Coaching by Myotonic Dystrophy Expert Ann S Woodbury

by Ann S Woodbury | Feb 7, 2022 | Uncategorized

Being a coach to our Myotonic Dystrophy (DM) loved ones is new territory for most of us. I know from personal experience, it was very difficult for me. I have a background in Family and Child Relationships from the University of Utah which came from the perspective of...
Ableism by Myotonic Dystrophy Expert Ann S Woodbury

Ableism by Myotonic Dystrophy Expert Ann S Woodbury

by Ann S Woodbury | Jan 31, 2022 | Uncategorized

When I graduated from college in 1980 (yes, I’m old) I graduated with a degree in the college of Social and Behavioral Science. I didn’t realize it at the time but I recently realized that all of my education was taught through the view of Ableism (discrimination in...
Andrea’s Heart Ablation for Atrial Flutter by Myotonic Dystrophy Expert Ann S Woodbury

Andrea’s Heart Ablation for Atrial Flutter by Myotonic Dystrophy Expert Ann S Woodbury

by Ann S Woodbury | Jan 24, 2022 | Uncategorized

On Dec. 28 Andrea, our 41 year old daughter, had her ablation done to treat the atrial flutter in her heart, which was diagnosed this last Sep 27 at her annual cardiology appointment. From my understanding, atrial flutter is similar to atrial fibrillation except that...
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