Sense of Independence

Sense of Independence

Most of us have been taught by society that if we help our children then we are teaching them that they aren't capable.It's inevitable in life that we need help and support from those outside of ourselves. How can we help our children and still teach them that they...

Eating and Myotonic Dystrophy

Eating and Myotonic Dystrophy

This is a picture of the dinner that I made last night. It's called "Cheesy Chicken Instant Mac With Veggies" It's made in an instant pot. What's great about it is that it has chicken (extra protein) and lots of carrots and spinach but it tastes like an incredibly...

Follow Ann’s Myotonic Dystrophy blog

Follow Ann’s Myotonic Dystrophy blog

I am SO EXCITED to announce that you can now register to follow my blog. Please go to annswoodbury.com and at the bottom of the website page you can register.The purpose of my blog is to help educate individuals as to the complexity of Myotonic Dystrophy. Even those...

4 a.m. E.R. visits

4 a.m. E.R. visits

                                          University of Utah E.R. at 4 a.m.Last December I went up at the U of U E.R. for 2 nights, Dec. 1 and Dec. 5 with Chad and...

Update from Michael re: Myotonic Dystrophy

Update from Michael re: Myotonic Dystrophy

Thanks Michael for this contribution.    You can ask me what's new and I will usually, without thought, give you the same tired answer, "Not much" or sometimes I'll say, "Not much, what's new with you?"If I really paused and gave it some thought I would...

Guest blogger: Jonathan WilliamsI met Ann at a writer’s conference in the fall of 2016. When I told her what I did—helping people write their own books and tell their stories—she told me she had a story to tell and wanted to know more. Ann impressed me as someone who...

Kent and Andrea update

Kent and Andrea update

We have had illness at our house. Kent (who has cancer along with his myotonic muscular dystrophy got real sick and ended up at Huntsman Acute Care (Huntsman ER). They gave him a LOT of fluids and ran a full panel of bloodwork to determine what he had. It was...

Myotonic Dystrophy: Doing What Needs to be Done

Myotonic Dystrophy: Doing What Needs to be Done

I can only imagine that when you have a child that has Down’s syndrome, Batten disease, or many of the other disorders that affect both mind and body, that you do what you have to do. Of course, it would be a very intensive labor of love to help them and keep them...

Absent Caregiver

Absent Caregiver

When I got up and looked at my text messages I saw one from Rily (today's caregiver), that he had sent at midnight. It said "I'm so sorry to text you so late but I fell off a roof a few hours ago. I got a little hurt so I won't be there tomorrow. I'm so sorry." Rily...