Surviving Myotonic Dystrophy is about Ann Woodbury’s journey as a caregiver for her family who were diagnosed with a rare disease – Myotonic Dystrophy (DM). DM is one of the most complex genetic disorders known, and is characterized by progressive muscle wasting and weakness.
Because this disease affects so many systems in the body, it can look like other diseases and is hard to diagnose. Ann Woodbury’s four children and her husband have DM. In 1998, at the time of the Woodburys’ diagnosis, even the doctors didn’t know all of the effects of DM or that it was a brain disorder.
Reading this book will take you on a journey of understanding this disease and its effects on Ann’s family members. Ann also includes tips and lessons learned to help caregivers maintain their own health and peace of mind while caring for loved ones who have DM or another chronic illness.
My understanding of Myotonic Muscular Dystrophy (DM) is shaped primarily by my own observation, as it is complicated by the varied way in which it presents in my family members. While I have studied extensively and work with doctors to expand my knowledge of the disease, I am not a medical professional and cannot prescribe treatment.