by Ann S Woodbury | May 2, 2022 | Uncategorized
I listened to Dr. Benjamin Gallais – Ph.D. presentation yesterday on the (Myotonic Dystrophy Foundation) MDF website. He talked about the research that he’s done on behalf of Myotonic Dystrophy (DM) individuals. He says that social avoidance is very common with...
by Ann S Woodbury | Apr 25, 2022 | Uncategorized
What is life about? It starts out so carefree, playing in the woods, building forts out of vines. Even young love and starting a family Put stars in my eyes. I had the whole world ahead of me. I was ready to take on the impossible. What glory there was...
by Ann S Woodbury | Apr 18, 2022 | Uncategorized
In late spring of 2021 I sat on the used car lot at Bountiful Toyota. It was a time when used cars were in big demand because the chips for new cars were on backorder. I was a beauty, heartthrob red with tan all leather seats. My trim was the top line of trim with a...
by Ann S Woodbury | Apr 11, 2022 | Uncategorized
Anxiety seems to be my constant companion. Of course, with a family with a rare disease such as Myotonic Dystrophy (DM), there are many unexpected anxiety causing and sometimes life threatening situations. I consider myself to be a very resourceful and creative...
by Ann S Woodbury | Apr 4, 2022 | Uncategorized
My husband Kent, not only has Myotonic Dystrophy (DM) but he also has Multiple Myeloma (cancer of the bone marrow). Kent was originally diagnosed in 2008 with his Multiple Myeloma and it has been a long and arduous journey for him to keep his cancer managed. He has...
by Ann S Woodbury | Mar 28, 2022 | Uncategorized
Living with Disabilities by Ann S Woodbury – Myotonic Dystrophy Expert Many of us have heard what it’s like to live with disabilities through the eyes of Emily Perl Kingsley. WELCOME TO HOLLAND I am often asked to describe the experience of raising a child with a...
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