by Ann S Woodbury | Jan 17, 2022 | Uncategorized
COMMON UNITY = COMMUNITY “The Myotonic Dystrophy Foundation is the world’s largest myotonic dystrophy (DM) patient advocacy organization, connecting people living with DM in more than 80 countries around the world. What helps make this organization so meaningful is...
by Ann S Woodbury | Jan 10, 2022 | Uncategorized
Last week my family had their semi-annual Myotonic Dystrophy (DM) appointment. We value these appointments and plan them as an all-day event. We have been told that our attendance at these appointments not only helps us but that these appointments are a way that we...
by Ann S Woodbury | Jan 3, 2022 | Uncategorized
My family members have frustrating personality traits. In order to get anything done around my house (chores and projects) I have to direct everyone through the entire process. My family is not motivated nor can they figure out the steps required to start and complete...
by Ann S Woodbury | Dec 27, 2021 | Uncategorized
Recently I wrote a post about feeding tubes. My son Michael also posted “My First Feeding Tube”. Along with the feeding tube that helps Michael stay hydrated there are a lot of other things that we have learned along the way about eating with Myotonic Dystrophy (DM)....
by Ann S Woodbury | Dec 22, 2021 | Uncategorized
My First Feeding Tube I guess I’ll start off by telling you that my name is Michael Woodbury. When I was asked to contribute I was more than happy to help out, especially because I dream of being an author someday. I have Myotonic Muscular Dystrophy type I and have...
by Ann S Woodbury | Dec 20, 2021 | Uncategorized
I have had several friends call me recently about their Myotonic Dystrophy (DM) family members who are being released from the hospital with a feeding tube. My friends and their loved ones are very alarmed because feeding tubes are seen as an end-of-life procedure....
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